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asweedee (December 31, 1969 at 6:59 pm)
My son was born with hlhs and at 9 months he had a heart transplant and he went to be with the lord nearly two weeks before his first birthday
shonaky (December 31, 1969 at 6:59 pm)
hey hun i think your on the truncus group on yahoo groups just saw video trevor is lovley hope your all well xxxxxxxmy son liam also has truncus
RuralGypsy (December 31, 1969 at 6:59 pm)
I am a 42 year old Congenital Heart Patient.. My defect is called D-Transposition of The Great Vessels. I am seeking all who have succeeded age 40 without a heart transplant. I would like to know their success story, and the quality of life for which they have lived. I have been told, I am the oldest living, in the United States, with this particular Heart Defect. Is this true????I accept any assistance available, in finding others like myself. Time is of the essence.
Rockerchick42987 (December 31, 1969 at 6:59 pm)
I hope you and your family are doing fine..I know exactly how you feel..my daughter was born with TAPVR..this video makes me so emotional
timandtabea (December 31, 1969 at 6:59 pm)
ohbuddyiliketowatch, we too lost our son when he was 27 days old to two Congenital Heart Defects. He had heart failure at 3 weeks old without any forewarning. We had no idea what was wrong as he was a seemingly healthy being born at 9 lb and 22 inches long. I understand your pain though no one can feel it in the way that you do. I pray that God heals your heart and keeps your precious child forever in your memories.
menve21 (December 31, 1969 at 6:59 pm)
what a cute lil guy glad hes doing ok
AddiesMamma (December 31, 1969 at 6:59 pm)
Unfortunately you may be right, it may not be until you hold your angel in Heaven before you have any conclusion, but I believe someday you will. I still am and will be praying that you get your answers when you meet with the coroner because as you know waiting isn't easy. Take Care- Gina
ohbuddyiliketowatch (December 31, 1969 at 6:59 pm)
i have a feeling it will be the same for me... god bless
AddiesMamma (December 31, 1969 at 6:59 pm)
I hope you get good, solid answers. We were waiting quite a while on our daughter's autopsy report as well.. it is very hard not knowing. Sadly our daughter's autopsy was not conclusive as to the exact cause of her passing.
ohbuddyiliketowatch (December 31, 1969 at 6:59 pm)
i don't even know yet for sure its been over a year and were going for the sitting with the coroner in 2 weeks for the autopsy report |
